Lindsay Tower has learned a lot about dealing with the
unexpected in the last few years. For her, the lessons began in earnest when
her son, Jayden Carreiro, arrived 15 weeks premature in June of 2007.
He was born on Father’s Day, weighing only one pound, 12
ounces and measuring a mere 12 inches long. Lindsay recalls her son’s
bittersweet entrance into the world. “He was so tiny. I didn’t even get to hold
him. They instantly put him in an incubator and transported him by helicopter
to All Children’s Hospital in St. Pete.”
After many early health crises, including a serious
infection and the need for laser eye surgery to prevent blindness, Jayden, now
two and a half, continues to struggle with medical issues. “He has eye problems
and renal failure,” Lindsay shares, “and he has brain damage, so he’s severely
delayed.”
With so many challenges, physical therapy has become a
crucial part of Jayden’s life. A stay-at-home mom with aspirations for
continued education, Lindsay says she’s especially grateful to Becky, Jayden’s
eye therapist from Lighthouse for the Blind, who first introduced her to the
idea of medical daycare and, specifically, Tender Care Medical Services.
New independence
According to Lori Mazzuco, RN, BSN, administrator of the
Hernando County facility that opened its doors in November 2008, so many
parents of children with disabilities have no idea a service like medical
daycare even exists. She describes the center as appropriate for children aged
birth to 21 who require skilled nursing intervention and ongoing therapy, and
who are deemed unsuitable for a regular daycare or school environment.
“We are a day-treatment facility for children with special
needs,” she explains. “We see children with diagnoses as mild as asthma to
children who require much more critical care.”
Each child at Tender Care Medical Services, Lori says,
receives direct care, with a three-to-one ratio of children to staff, which is
made up of RNs, LPNs, and CNAs (certified nursing aides).
A typical day
To maintain the highest standard of care, Tender Care
Medical Services relies on a carefully crafted daily schedule.
“Around six o’clock each morning,” Lori shares, “our
nurses and aides pick up the children from their homes on buses we send out.”
When the children arrive at the facility, she says, they
have breakfast and then a staff nurse gives each child a head-to-toe assessment
and the children receive their medication and treatment. Afterward, the
children see therapists.
Beth Martin, PT, explains, “Each child is carefully
evaluated by a physical therapist, such as myself, as well as an occupational
therapist and a speech therapist when they come in. Based on this, we set up a
care plan based on a child’s specific needs.
“This helps a parent with early detection in case anything
is wrong with their child’s condition. And it also helps us to educate parents
about their own child’s particular weaknesses.”
Lori points out, “Lunchtime with our staff is also a
crucial part of our care. For instance, our speech therapy is often geared
toward helping a child learn how to chew and swallow food properly. This is
something that’s really tough on a parent. Sometimes, they’re not aware of how
to support a child and position them properly while feeding. I know one mother
who was cradling her child like an infant during feeding and this was stalling
the child’s progress. Our staff can really help with aspects of care like
this.”
Following lunchtime, the children of Tender Care Medical
Services are taken out to the playground, and after playtime, Lori says the
children receive their medications before getting ready to head home around
four o’clock.
And then there are all the little extras, Lindsay adds,
like changing Jayden’s feeding tube, for example. “Not only do they show me how
to do something if I’m not comfortable or if I need to know, but they’ll also
just take care of it for me. They’re extremely helpful.”
New milestones
Since beginning with Tender Care Medical Services about a
year ago, Lindsay says she’s noticed big differences in Jayden. “Oh my
goodness,” she marvels. “I have a list. He definitely moves around a lot more,
and he’s always smiling and always happy.”
And one of the most important changes, she adds, is that
he’s eating baby food off the spoon during speech therapy and taking bottles
rather than using a feeding tube. “He used to be on his feeding pump
twenty-four hours a day, and then he went to being on it just at night,”
Lindsay explains. “Now, he’s not on it at all, and he takes his bottles all by
himself. He just started holding his bottle recently, probably about a month
ago.”
Jayden’s not the only one with new achievements, however.
Upon finding such wonderful care for her son, Lindsay has returned to school
with plans to pursue a degree in nursing. “Since having Jayden, and dealing
with so many medical problems, I realize I would love to be a nurse,” she says,
giving Tender Care Medical Services sincere credit for the progress they’ve
both made.
“Not only has it helped him, but it’s really helped me to
get my life together, and that’s going to make me a better parent. I can take
care of him better.”
From Lori’s perspective, such an outcome is one of the
most gratifying things she and her staff accomplish at Tender Care Medical
Services. “Not only are we helping this child, but we’re also helping this
mother make a better life. And, in return, even more positive things are going
to happen for Jayden.”
As Lindsay has discovered,
sometimes the unexpected takes us exactly where we’re supposed to be. “They’re
just really, really good at Tender Care. I love them. I definitely wouldn’t
want Jayden anywhere else.”